Hello 1st post

by **Tee** Sat Apr 16, 2011 1:29 am

Hi

My name is Tracey and I was diagnosed as having 'chronic Hemiplegic migraine and persistent aura' 5 years ago.

Whilst I have had classical migraine (migraine with aura) since I was 13 years old, it was not until I was 18 that I had my first hemiplegic one. At this age my understanding of migraine was limited, and I just accepted it as one of those things. I basically carried on as normal. Even when I had my first massive migraine at 29, and was hospitalised, I refused to accept anything was really wrong. Things however progressively got worse and then at 35 I gave birth to twins, via a very stressful C section and my world was turned upside down. I had a very bad bleed following the birth, which kicked off a massive stroke migraine, which in turn, kicked off chronic migraine, and I had a migraine everyday for 2.5 years! They are still at the chronic stage some 5 yrs on.

It is only now, via experience, that I have learnt that migraine is a life long condition and you need to change your life to suit it - triggers must be avoided and treatment must be sort.

I am sure we all remember our first migraine - a very scary experience I am sure - but this condition does not have to be scary or isolating, and my hope is that this forum will allow those who are going through that scary stage as well as those who are at there wits end, some form of comfort.

Knowledge is the key to managing migraine Very Happy

Tee x

by **Sarah** Sat Apr 23, 2011 2:45 am

Hi and nice to meet you. Smile

Sounds like you've had a rough old time of it. Sad

I totally agree that migraine is a life long condition. It's so nice to be able to talk to people who understand that chronic migraine isn't just a case of taking a pill and it magically disappearing. I don't think people realise just how little is really known about migraine.