Hi my 1st post

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Hi my 1st post

Post by Alba-Neuk on Wed Apr 20, 2011 7:55 am

Hi, my name is Karen I am 39 years old. I have suffered from Ocular migraine for 4 years, until summer last year where I began to get numbness in my face followed by vertigo, this continued until Dec 2010 when i woke i felt really strange - spaced out, i couldn't talk only make grunting nosies, i tried to get out of bed where I found i was paralyzed down my right side, I immediately thought stroke. After an hour the symptoms passed and by this time the doctor eventually arrived where i was able to walk but my field of vision was still in aura - zig zags. I have since had ct scans where I am now diagnosed SHM. I am still trying to find my feet with having this, Taking panic attacks is a regular occurrence to me now as I wake wondering if today I will have another one. i don't want migraine to take over my life. Sad I want to get back to being me again.
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Re: Hi my 1st post

Post by Tee on Wed Apr 20, 2011 8:46 am

Firstly Alba-Neuk Welcome to the forum.

Your symptoms are like many who are here already, what you describe, sounds like a massive migraine attack - I have had 3 and was hospitalised for 2 of them. The last one 5 yrs ago was first thought to be a stroke, so I know that feeling of total weakness and having dribble run down your chin LMAO - One question where you very stressed at the time of the attack?

Please do let us know what medication you have tried (under the relevant threads or start a new one - we will not mind) I know the others and I have probably had all of them between us lol. And there are a lot out there.

Hopefully, we can all help you find your feet with this.

Tee x

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Re: Hi my 1st post

Post by Alba-Neuk on Wed Apr 20, 2011 8:58 am

thank you and yes I have posted in another thread about which meds I am taking.
I wasn't unduly stressed no. But symptoms had been presenting themselves to me for a couple of months prior to the big one. I took a strange turn in Oct 2010 where I couldn't see, was very scary. Dizzy spells on and off until that attack. I have since been left with a weakness in my right arm, holding a pen - writing is very difficult. Thank goodness for keyboards Smile Docs say my motor skills will return in time.
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Re: Hi my 1st post

Post by Tee on Wed Apr 20, 2011 9:13 am

"One step at a time - what you did today for 1 min do tomorrow for 2."

Best advice I was ever given my a doctor - I pushed and pushed it and just made things worse.

Motor skill will come back - mine did - it just takes time

((()))
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Re: Hi my 1st post

Post by wildone on Thu Apr 21, 2011 2:41 am

Hi Alba-Neuk

Welcome, as you can probably see I am new here too.

I am quite surprised of how the migraines show themselves as stroke like symptons, and having suffered a stroke myself its hard to define what is or is not a stroke, a question I asked ny Neurologist and at what stage should we dial 999 for an ambulance. His answer was, if you feel you need an ambulance then call for one.......that still leaves the question unanswered.

You like me have motor problems, but mainly from my stroke and I find after every migrain they get slightly worse.

Like you say Tee what you did for 1 min today try for 2 mins the next, I work in the same manner, its like going out on my own to the shops, and now can stay out for upto an hour on my own, but as my consultant told me "Always carry visable identification and a list of tablets I am on" also to take my migraine pills with me.

I hope we all exchange stories on the forum and can get some value and support from it.

graham
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Re: Hi my 1st post

Post by Tee on Thu Apr 21, 2011 4:06 am

Graham

That too is a question I asked my consultant - and like you I never got an answer - The problem I have is I am not 100% sure I had a stroke - the first doctors all say I did, however my latest one says that it could just have been a massive Migraine. - But saying that, if I had one as bad as that again, I would call 999.

It certainly was the worse I have had and if I am honest it took me 2 years to get to a stage where I could 'think' again.

Every one is different but memory, motor skills and just the process of thinking does come back - it just takes time.

One think that does annoy me is that they offer stroke victims rehabilitation, why not to migraine victims?

Tee

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Re: Hi my 1st post

Post by Sarah on Sat Apr 23, 2011 2:43 am

Hi and nice to meet you. Smile

Your experience sounds quite terrifying. I can definitely relate to what you say about wanting life outside of migraines and to be yourself again. Our illnesses don't define us but they certainly put plenty of obstacles in our way. Sad
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Re: Hi my 1st post

Post by whitzendJane on Sat Apr 23, 2011 6:46 am

I wanted to say hello and welcome Smile

I think they still know so little about the brain and migraines. Even in the last 4 years I have seen a lot of changes in how it's explained and the things they are finding out.

I do think forums like this one really help as it collates a wealth of knowledge from sufferers and buy thrashing things out we can gain a better understanding. It's interesting to see the range of symptoms we have (although I am no longer surprised by the fact that there is no 'bog standard' response to a migraine).

I am really pleased that already I have seen postings from new chronic sufferers as I feel we are under represented and poorly understood by people in general. The general public out there can't imagine anyone with a migraine functioning at all, but we do in our own chaotic way.

I reckon I was given twins because I am a control freak and migraines because of my sheer, and uttely annoyng persistence ..some would call it OCD but I like to think of it as dogged determination lol!
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Re: Hi my 1st post

Post by Alba-Neuk on Sat Apr 23, 2011 9:46 am

hello to you all, thanks for replying to my post. It is such a huge help to read all your posts and see we are not alone. I have learned so much from forums in the past weeks and am so glad to have a new network of people around to talk to or vent.



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Re: Hi my 1st post

Post by Sheena Hulston on Mon May 02, 2011 6:18 am

Hi alba I too Like the rest and you had a massive" stroke" and ended up in an ASU but I found the best advise given to me was by the physio, He said the brain takes 80% of our oxygen when healthy and more when "bruised" by anything so after any episode REST.
I can remember the panic at first the fear and all that wondering if my memory would come back and my speech even being able to follow the thread of a conversation, but it all does!! It takes time and lots of sleep.I felt I had to push myself at first but it did more harm than good, The physio sat me down and told me off when I fell down the stairs and explained to me how important rest is for recovery!!!
So go easy at fist. x I found going out by myself the worst and still dont do it unless I really have too. x
Sheena
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Re: Hi my 1st post

Post by Tee on Fri Sep 30, 2011 7:54 pm

Karen, just wondered how you were getting on?

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