Really fed up

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Really fed up

Post by sarlyka on Tue Jun 19, 2012 2:09 am

I am fed up Sad
On Saturday, hubby and I travelled 250 miles to attend a family christening. I had a migraine when I woke up on Saturday morning but drugged myself up and hoped for the best. The migraine faded and we had an enjoyable evening with one of hubby's cousins. The following morning though (the day of the christening), the migraine had returned. I took my morphine and cyclizine but, by the time we'd got to the church, I could barely move my head and I couldn't even move my arm to undo my seatbelt. I sat in the car whilst hubby went to the service. Then we drove the short distance to the hall where there was a small party. I stayed in the car. I knew I wouldn't be able to cope with the noise and the people touching me - hugs etc. Hubby popped out every now and then with a cup of tea for me. A couple of relatives came out to say hello but I wasn't capable of any conversation, just the occasional word of acknowledgement. And then we drove back home.
Today I feel really fed up. Everything is annoying me. Hubby hasn't gone to work and he's driving me potty. Even his eating is too noisy! I feel I lost the weekend and lots of people probably thought I was just being antisocial. I hate migraines Sad

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Re: Really fed up

Post by Tee on Tue Jun 19, 2012 7:57 am

Oh sweetie big Hug - so been there and its pants............. I am really so sorry to read this..... but you know what you tried and even just travelling 250 miles is a step forward....

I am sure those people around you understand - if not fully - hopefully enough to realise you are not well.......... but it has to be said migraines are crappy horrible monsters which take your life away.... Scream

But I had to smile at the 'hubby eating to loud' - my husband does that to the point where I have left the table before - the good thing is you do not have to be polite to a hubby all the time............

I hope you feel a bit better soon xxx

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Re: Really fed up

Post by Laura on Tue Jun 19, 2012 8:26 am

I'm feeling fed up too. I missed another social occasion with friends. I had the audacity to think I could invite girlfriends over for drinks on the porch on Saturday evening. I had a mild migraine Saturday morning, but not too bad. So I went ahead and started trying to clean the house to make it presentable. The migraine just got worse and I had to send texts to my friends cancelling. This has happened so many times. I'm just lucky I still have friends. Now I'm sitting at the office completely unable to concentrate on work. I'm lucky I still have a job. If I lose it I don't know where I'll turn to help pay for doctors and treatments. I hate migraines too.
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Re: Really fed up

Post by Miyah on Wed Jun 20, 2012 8:56 pm

I am so fed up - can't even find words for it anymore. I am seeing 'my' neurologist on Monday, unfortunately on my own as my hubby is away working at yet another festival. I really do need support at these type of appointments as I don't know whether I have always been this depressed or whether I am meant to be just happy I have gone from 6-7 migraines a month to 3-4 when the migraines seems to be the lesser of the evils. its the days leading up to and the days after. practically means I never really feel okay.

it takes everything in me to keep my full time job let alone being a mum to a 3 year old with no family around me.

it will get better though - it doesnt feel like it can get much worse.
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Re: Really fed up

Post by Dr Pav Khaira on Thu Jun 21, 2012 12:00 am

Wow, you guys have it bad! I may have missed this, but tell me more about your migraine histories? Sometimes it can give clues as to the best way to manage them

People almost always forget that it's the impact migraines have on your life which can be just as bad as the pain
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Re: Really fed up

Post by Tee on Thu Jun 21, 2012 10:53 am

Miyah - is there a pattern on when they are coming - I was just wondering if there was a 'time of month' link??? I just say that as my neuro has just but me on some meds to take 2 days before and 5 days after... to see if we can lessen my monthly blip????

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Re: Really fed up

Post by Tee on Thu Jun 21, 2012 10:55 am

Oh Laura sweetie - you pushed it Sad So been there..... its pants but I too find if I run around cleaning to get the place sorted I am a mess by the time everyone arrives - combo of the stress of the rush and the chemicals... the chemicals have gone and last time I had mates round I limited it to one room... Do hope your feeling a bit better xxxx

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Re: Really fed up

Post by Miyah on Thu Jun 21, 2012 11:02 am

I have been kinda hoping there would be a link between my periods and the bad migraines but no consistency whatsoever - I get about 1 pr week and although I do spend A LOT of saturdays in bed - they dont seem to discriminate between what day of the week it is.

The only consistency I can find is:

stress
dehydration
skipping a meal (or snack!!)
champagne and fizzy wine
hot humid weather / air pressure(but mostly if it changes quickly)

Obviously the ones in my control I am all over like a cheap suit but weather and stress - well..... one can only try!!

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Re: Really fed up

Post by Miyah on Thu Jun 21, 2012 11:04 am

Yes I too have often found the hard way that pushing yourself when you know you have a migraine brewing is like signing your life away.

BUT sometimes needs must!!

I do want to get better at making these exceptions for private life only and not so much work. Although if I lose my job we would lose the house and with a large chunk in negative equity and a lot of debt on the side that would be bad. very bad.
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Re: Really fed up

Post by Dr Pav Khaira on Thu Jun 21, 2012 7:10 pm

Miyah, when you say you spend most Saturdays in bed, is this due to 'weekend migraines'? or just fatigue from the week? Out of interest, do you have a lie in on Saturdays? How are your energy levels?
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Re: Really fed up

Post by Miyah on Fri Jun 22, 2012 8:48 am

I always go to bed same time and wake up same time (not just because it is recommended but with a 2 1/2 year old it happens naturally!!). It is mainly just end of week slump I guess? - it takes a lot for me to work full time when I am more or less always in discomfort one way or another. It isn't like I always have a full blown migraine but I might simply have a baseline headache, which I will desperately try not to take anything for as I save pain relief for when I really need it, bouts of depression which comes in days before a big one and stays around after as well, with other sort of weirdness like tingling, restlessness, aggression (this is something I am good at hiding so people will not experience me as aggressive but if only they could read my thoughts!!) I guess since I nearly lost my job last year I have put so much effort into my new job with a new manager to show them that I can cope. As long as I can get into the office and back home (if that makes sense) so come end of play Friday I think my body just says stop. Just at the time when I would love to see my family and get house chores and cleaning done. I am lucky in the sense that I respond well to sumatriptan (imigran radis) when I get a big one I can 90% of the time stop it in 2 hours and get myself into a state where I can get into the office.

I think my energy levels are okay - I walk every day, work on the 5th floor and always use the stairs and when I wak up in the mornings I feel rested and I do not have problems falling asleep (very lucky there as well) especially after my hubby bought me a new mattress for Christmas. Memory foam top layer SOOO GOOD!!

I am seeing my neurologist Monday and will ask for anti-depressants - not a massive fan of piling things on top as I fill like a pill box already but my mental health is getting out of hand and it scares me. At least I can give it a go.
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Re: Really fed up

Post by sisterphonetica on Sat Jun 23, 2012 8:21 pm

Big hug to the fed up team. I am with you.

I went out last night to a friend's gig (we are all in various bands). I was ok at the beginning, but then my friends wanted to move to the front to see our friends on the stage. As soon as I got nearer the front I could feel TOO MUCH HEAT, and quickly had to retreat to the back to stand on my own (heat is a huge trigger). So I stood at the back, feeling more and more detached, on my own, and then sloped off home after friends were off the stage. I was an hour later in bed than usual too.

I knew the heat was too much (never mind the pressure of socialising with people who dont' have these pressures), and I woke up this morning with a full blow migraine. Thankfully my medication worked but it was touch and go for a bit.

Even when I try to do normal stuff I always end up not quite managing and then suffering with a migraine for it.

No Fair.

Out to do it all over again in a bit, but at least I know I am able to stand in the rain all day without it triggering a migraine as it's Not Hot!
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Re: Really fed up

Post by Laura on Sun Jun 24, 2012 1:32 am

"Fed Up Team" Lol! Love it! Sisterphonetica I do hope your migraine is nixed for the day.

I did manage to go to a girls night at a friends house for 2 hours last night. I am grateful for that - but did leave way before the others as I felt one coming on. Staying up past my 10pm bed time is a trigger.

Tee, you used the word "pants" in a way I'm not familiar with: " its pants but..." Must be an English English thing. I'm curious, what's it mean?
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Re: Really fed up

Post by Miyah on Sun Jun 24, 2012 8:55 am

pants = rubbish!!

Very English indeed. I am forever learning new english expressions and also finding out the funny way that even if I do know a saying/idiom in Danish that makes sense - directly translating it rarely works..

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