my story-migraines for 14 years and are getting worse

I started getting migraines at the age of 18 after my wisdom teeth were removed. They started as menstrual migraines where I would get them 4-5 days a month to 1-2 weeks a month. During and after pregnancy with my children they turned into daily chronic migraines that I have had for the past 5 years. I have tried everything in the different medicine category for preventatives besides botox and nothing seemed to be very effective. On April 30 this year I had what i thought was a stroke. It was my first hemiplegic migraine. I have been getting them 2-3 days a week since. I have auras and then I lose my speech, paralysis, numbness, and muscle weakness on my right side and confusion and concentration and memory problems and my headache changes and gets worse. I have had infusions and taken a round of steriods to try to stop the attacks from being so frequent. They increase my zonegran from 200 to 300mg and told me to take magnesium for the attacks with my pain medicine indomethacin. i also take toprol xl for a heart condition i have(tachycardia). I am really feeling upset that I am having a hard time doing things for my kids who are 6, 4, and almost 2. I want to take care of them but these headaches have take control of my life right now and I am not able to do the things I use to do with them. i have to wait until august to see my neurologist. that is the first appt they had available. what can i do until then?

Kimmie

i too have HM and struggling with it at the minute, its hard to manage just myself and i dont have kids to care for, HMs are scary i had my first last year and it scared the wits out of me but it had been happening without headache parts of me going numb and useless at times

i dont really know what to say as getting it hard to understand written word myslef at present but im in the middle of a HM attach so i hope you understand

its a great forum really suppoirtive and everyone is lovely

Hi kimmie_lu, and welcome to the forums. I can understand your distress. I don't know where you live, but if your health system is anything like ours in NZ, waiting to see a specialist is a fact of life.

Although I have been living with migraines for around 50 years, I didn't realise that many of the symptoms I experience during a migraine are "normal" until I discovered these forums. I feel less "odd" and alone since I have started frequently Migraine Talk, and even if it doesn't do anything for my migraines, it does a lot of good for my soul.

Hope it goes well with the neurologist! How long have you been waiting to see them?

I have been waiting since beginning of May when I saw the nurse practitioner after my first initial HM attack. I am glad to find this forum to know that their are others out there who deal with this like i do. i didn't know if anyone had advice on what to do with 3 young kids when i have HM attacks. I don't have much reliable help and my husband works 2 jobs.