Hi from Pittsburgh

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Hi from Pittsburgh

Post by Kimmikins on Thu Apr 28, 2011 10:29 am

I am a 46 year old female and have suffered from migraines since I was a teenager. However, the twist began a year and a half ago. I began having brain fog, memory lapses, inability to focus, fatigue, buzzing in my head, pressure behind my eyes, and many more symptoms. After the regular visits to my PCP, and being told I was depressed and suffering from anxiety, I fought back and insisted that he refer me for more tests as these symptoms were 24/7 and I was at risk of losing my job. He sent me for an MRI which was negative. Off to a Neurologist I went and have been working with her since. I am currently on a treatment of 100 mg of Topomax a day and we are still tweaking meds for the buzzy feeling and brain fog as it seems to come and go every couple of months. I really don't have "pain" on a regular basis with my migraines. Mine are a different kind I guess. So that's my story. I'm looking forward to learning new ways to deal with this. Currently researching the Magnesium theory.

Kimmikins

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Re: Hi from Pittsburgh

Post by Tee on Thu Apr 28, 2011 7:10 pm

Hello there and welcome

Sorry you have been suffering so long. But pleased you fought back!

Its sounds like you may have Acephalgic migraine. Its something I still have everyday - its just the strength of it that changes. (Mine has a lot of left side weakness too - so Hemiplegic undertones)

Acephalgic migraine (also called acephalalgic migraine, migraine aura without headache, amigrainous migraine, isolated visual migraine and optical migraine) is a neurological syndrome. It is a relatively uncommon variant of migraine in which the patient may experience migraine symptoms but does not experience headache. While it is generally classified as an event fulfilling the conditions of migraine with aura with no (or minimal) headache, it is sometimes distinguished from visual-only migraine aura without headache, also called ocular migraine.

However saying that do you have any body weakness or tingling?

How are you finding the Topomax? Has it helped at all?

Let us know how you get on with the Magnesium?

Tee
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Re: Hi from Pittsburgh

Post by Sarah on Fri Apr 29, 2011 12:36 am

Hi - nice to meet you. Smile I'm very interested in all things magnesium (as you'll see from the thread I started).
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Re: Hi from Pittsburgh

Post by Christina on Fri Apr 29, 2011 12:58 am

Im on Magnesium and B vitimin complex my neurologist advised me on taking them both,alas Neither has improved my migraines...But i do know there has been good results in taking both xx

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Re: Hi from Pittsburgh

Post by whitzendJane on Sat Apr 30, 2011 5:38 am

Just wanted to say 'Hi' and glad yo fund the site. I hope you find talking to the other sufferers helpful and I know we will all be supportive to each other.

Nice to hear of someone who can tolerate Topamax, It can be helpful if you don't get too many side effects (much like anything else I guess ).

Jane
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Re: Hi from Pittsburgh

Post by Kimmikins on Sun May 01, 2011 8:35 am

Tee, I get tingling in my fingers and toes occassionally. But no weakness. The worse part of this for me is not being able to "think" when these headaches peak. It seems they are always there, but the topiramate(Topomax) keeps them subdued. When they break through, I can't thnk clearly, I can't even make eye contact with people because I can't focus my eyes, and my speaking becomes a challenge. I feel like I've had 3 glasses of wine. I search for common words and then I can't get the wrods to come out. Very frustrating because I manage a staff of 6 people and work with the public. I'm getting to really appreciate the good days of little or no "episodes".

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Re: Hi from Pittsburgh

Post by Tee on Fri May 06, 2011 8:42 am

Oh I am so sorry - but you know you are doing so well to work with this Smile

The thinking, eye focus and speaking are all physical aura - I get the same all the time - I have found that the more I do the worse it gets.

But I am pleased you are doing OK on Topomax, I had a bad time on that one. Have you tried Fluarazine? It is the only drug which seemed to reduce the aura significantly for me. It can make you sleepy. But if your coping with Topomax, you should cope with this one.

I do wish I had a magic wand at times.

How do you think the magnesium is going? _ I have just started to use that via a spray.

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Re: Hi from Pittsburgh

Post by figgy on Tue May 24, 2011 2:53 am

After reading and having a nosey at these threads i didnt realise that there were so many different types migraines.
How come dr's dont tell you that or is it something that we all have to find out for ourselves!! I knew there were classic migraines or common migraines. I'm a bit confused to all the other ones, mind you it doesnt take much to confuse me haha.
Any help in clarifying them would be appreciated,altho theres probably a bit about them that i've failed to see. (Sorry if thats the case!!)
xx

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Re: Hi from Pittsburgh

Post by Kala on Tue May 24, 2011 3:03 am

Hi again Figgy,

As you have rightly said there are classic migraine (meaning migraine with aura) and common migraine (migraine without aura). However, classic migraine can be subdivided into other rarer types of migraine, such as hemiplegic migraine (meaning there are additional aura symptoms including weakness down one side of the body like a stroke), Basilar Artery Migraine, which is similar to hemiplegic migraine but the basilar artery in the brain goes into spasm causing severe vertigo, and weakness in both sides of the body), etc. If you have a look around you will find more information regarding the different types of migraine.

I hope this helps.

Michala
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Re: Hi from Pittsburgh

Post by figgy on Tue May 24, 2011 3:10 am

Thanks,that is useful. :0)
Not sure my doctor knows that though!!
xx

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Re: Hi from Pittsburgh

Post by Sheena Hulston on Tue May 24, 2011 6:28 am

Hi Figgy Have you seen a consultant yet or are you just under a GP then.
Sheena x
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Re: Hi from Pittsburgh

Post by Tee on Tue May 24, 2011 7:37 am

figgy wrote:
Any help in clarifying them would be appreciated,altho theres probably a bit about them that i've failed to see.

I have added a sticky on the different types of migraine - was on my list to do anyway lol - hope it helps.

EVERYONE - If i have missed anything please do shout.


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Re: Hi from Pittsburgh

Post by figgy on Tue May 24, 2011 8:44 pm

Hi Sheena,
am have always been under the doctor. Think he just gets fed up with me moaning!!
I've always thought i'd kept a strict diary of my migraines but it looks like i havent. So i'm on a mission to 'figure it out'.
I have noticed that i am getting them when i'm really busy,with bday parties,and appointments etc. Maybe i stress myself out more than i thought.
I'm getting some magnesium spray today too so fingers crossed!!

:0)

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Re: Hi from Pittsburgh

Post by Sheena Hulston on Wed May 25, 2011 8:18 am

Just a note the topamax "gives" me tingling in my fingers and toes its one of the side affects X
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Re: Hi from Pittsburgh

Post by figgy on Wed May 25, 2011 9:30 pm

I get tingling in my fingers most of the time, i'm always thinking i'm gonna have a stroke!!
I'm really liking this site, everyone is so darn friendly and nice :0)

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Re: Hi from Pittsburgh

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