Newbie Hello

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Newbie Hello

Post by barspeed on Thu Jan 05, 2012 7:36 pm

Hi, im Jon, 36, and I have suffered from migraines since June.

I have had headaches and migraines on and off for 30 years or so but I have been able to shrug these off and they have not had enduring effects.

Over the last several years I have had a degenerative back condition following a car accident and have had to consume large amounts of pain killing medication and undergone various operations.

In January 2011 I had a bad car accident which caused further damage to my back and neck.

I recovered well from that and had an operation set for June. Before the Op I went away on holiday and on return I experienced severe fatigue and migraines, visual disturbances, sensitivity to light, sound and smell. At the end of June I had my operation which was cortizone injections throughout my back, neck and shoulder.

This caused an increase in my migraine symptoms and I would suffer everyday, at times it felt as though it was made worse by stress.

During this time I have also found that short term memory had been effected and recently I have learnt that my long term memory has suffered when I have been asked recently to recall facts and figures going back to August which I should be able to remember.

A humourous aspect at times has meant an increase in spoonerisms in speech and mixing metorphors and not funny, stuttering.

Back in August I had an MRi scan in which I fainted and was in A&E for several hours until I regained consciouness. No physical abnormalities were found and it was decided that a reduction in pain killers would help however high levels of stress can be a trigger still, as well as an increase in pain killers when needed.

Back in October I was suspended from work due to misconduct, this followed an incident I was involved in a week after I collapsed in Hospital.

Whilst I can recall what I felt I experienced in the incident, during which I was enduring a migraine, these do not match witness versions, which is why I was suspended pending disciplinary action.

Do any other serious migraine sufferers experience weird short and long term memory loss when a memory of an event is warped or the details, times and dates are confused?

Thanks

Jon

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Re: Newbie Hello

Post by whitzendJane on Thu Jan 05, 2012 9:41 pm

Sorry to hear of your probes Jon. Sounds like you are going through it.
YYes what you describe, problems with memory, hazy recall feeling in a daze ,,even the speech problems can all m symptoms of migraine. They could also be linked to other things too.
I would strongly recommend you ask to be referred to a neurologist who is a headache specialist. I will warn you that they will recommend you cut your pain killer med usage to 2 days per week max.
Have a look at the 'medication over use headache' topic and also the list of headache specialists..that way you can find the nearest one to you..your gp can refer you.
It would be prudent to start a headache diary as the neurologist will want to look at this.
I'll post the links up in a min.
Take care
Jane
x

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Re: Newbie Hello

Post by whitzendJane on Thu Jan 05, 2012 9:46 pm


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Re: Newbie Hello

Post by Tee on Thu Apr 05, 2012 1:24 am

Hi Jon

Sorry I missed your post and even sorry to read you have had such a rough time..... did you look in to finding a migraine nero as Jane suggested?

The memory loss and time warpness you describe are known migraine auras......... you may find this list of help?

Tee

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Re: Newbie Hello

Post by pīwakawaka on Sat Apr 07, 2012 11:46 am

Yes, Memory problems is something I experience in relation to migraines. It is quite common for me to lose hours and on rare occasions, days. To make matters worse, I am often unaware that I have lost the time unless someone else brings it to my attention.

Also, my mood can change significantly. Normally I am a very easy-going and tolerant person, but during a migraine episode I can sometimes develop an obsessive–compulsive personality and can't tolerate anyone else deviating from what I consider is the "correct" way of doing things. Also I can't stand being touched. I have been known to fly into a rage at such times. If I do remember what happened afterwards, then what I remember is always at odds with other witnesses.

The brain/mind can certainly misbehave during a migraine. Not knowing how to string a sentence together, forgetting the function or purpose of every-day items and loathing things that I usually enjoy are just some of the things that happen to me.

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Re: Newbie Hello

Post by janiceclark47 on Sat Apr 21, 2012 7:14 pm

Hi, wow have been reading through all the threads,such a lot of advice, i've suffered from migraines since i was a teenager(47 now) at the time and for many years after i only had 1 a month, always starting with an aura, going onto pins and needles in my fingers on right hand side then the mind numbing pain that sent my to my bed with curtains pulled tight, always with queasy tummy but rarely being sick, however over the last 5 years they have increased gradually until i was having up to 3 a day, but with added side effects numbness on my face usually cheeks and nose. What i now know is aphasia, how weird is that 1 knowing what you want to say but it all coming out as complete gobbley gook, short term memory loss(scary not remembering what your children are called), obviously i marched to the docs convinced that i was having some kind of mini strokes, i was given some antenolol, pizotifin and Sumatriptan and told i was just having Migraines that where mimicking strokes, and have been referred to York hospital to see a neuro guy, for about 2 days i didn't have any migraines, then they kicked back in boy what a joy, i was losing feeling all over the place,numb arm that felt like it weighed 20 stone, legs that would suddenly stop working, then be fine 1/2 hour later, so back of to docs, where i promptly passed out, first time that's ever happened, woke to find myself on his bed in his office, he didn't call an ambulance because he knew what the problem was, the antenolol had sent my blood pressure down to low, so straight of the Antenolol and onto diazapam and straight into sleepy land, i still get Migraines always with an aura and the pins and needles followed by numb hand and nose, but touch wood for the first time in months i am going on a week without 1, but i know from xperience that once my body gets used to the dosage that i'm on they will come back, am still going to see neuro guy, to make sure there is nothing more sinister going on as i have 2 boys with Epilepsy, my doctor is really annoyed that i haven't been referred before now as apparently the 2 conditions can be related, oh dear i have waffled on haven't i, so nice to have somewhere that have people on that suffer as i do, migraine seems such a small word but boy those who don't have them can never under stand just how low and miserable it can make you feel, and how draining it can be, my worst migraines can leave me feeling tired and achy for days, will shut up now, hope all who read this are having a good day today:)

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Re: Newbie Hello

Post by Tee on Sat Apr 21, 2012 10:46 pm

Hello Janice and welcome Smile

I am sorry to read you having a bad run of these - you are by no means alone and will find loads and loads of other stories which you will no doubt relate to...

Do you know what type of mig you have?

I was always told there was a very fine line between migs and Epilepsy... which is why so many of the Epilepsy drugs (in small doses) work for certain mig people.... will be interesting to see what the doc in York says.

Have you been able to work out any of your triggers?

Oh and you may find this interesting -

http://migrainetalk.forumotion.co.uk/t250-types-of-aura


Hugs Tee

PS - Love York - miss it at times

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Re: Newbie Hello

Post by janiceclark47 on Sun Apr 22, 2012 12:08 am

Hi Tee, After 33 years of Migraines i've never figured out what my trigger or triggers are, it was only when my migraines got so much worse that i even went to my, doc, i was bought up in a military home, where it was a case of suck it up and stop being a baby, am hoping that neuro guy can tell me what kind they are, have spent best part of last 2 days reading through the threads, i've found Migraine to be a lonely place, my doc told me the other day that i am the only person in my village that has them as bad as i do, but do have good friends that pop in and out to see how i am, did you go to the York migraine clinic, the letter says my first appointment will be 1 and a half hours long, find it hard to concentrate on anything for that long, wondered what i could expect on first visit?? am gonna follow the link you've put up for aura's, personally have a like/ dislike relationship with them, like that i have a forewarning of what's to come and can take my Sumatriptan to stave of worst of the pain, dislike not being able to see, it's like looking through a kaleidosope and makes me feel all wobbly and queasy and wandering which part of me is gonna go numb this time!
Thanks for taking the time to read through my ramblings,
Jan

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Re: Newbie Hello

Post by Tee on Sun Apr 22, 2012 11:12 am

Hi Jan

I have not been to that clinic - I just love York and have fond memories of Bettys Smile

The hour and half is normal - my advice is taken someone with you who can listen for you and talk for you - write your questions and note son your medical history down before you go... you can then take a few days or even weeks to do this slowly and not have to 'think' on the spot....

They will go through your whole medical history - I remember my first appt well (in fact had a few of them) and it can be damn hard work... so having someone with you is a must...

They will want to know how many migs your getting now and at what scale so if you have mig diary that will help you - if not start one today - there are examples on here... Also write down the meds your taking and how much - I remember getting questions fired at me and I just could not think straight to answer...

The aura list in an interesting one - in that it will probably list a few things which you have not associated with migs - When I was researching it I found it quite an eye opener as I had a lot more aura than I thought....

http://migrainetalk.forumotion.co.uk/t330-types-of-triggers

Let me know what you think?

The type of mig is important in some cases - as with some the kind of meds you take may have to be controlled - this is a starter for 10 - but you do need the doc to confirm which one it is and he needs your full history for that....

http://migrainetalk.forumotion.co.uk/t185-types-of-migraine


Tee






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Re: Newbie Hello

Post by Dr Pav Khaira on Sun Apr 22, 2012 7:57 pm

As far as neurology clinics go, York is pretty good! Hope you can get them under control Smile
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