Hello i'm a newby

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Hello i'm a newby

Post by kellys on Sat Nov 26, 2011 9:03 am

Hi i'm Kelly and i'm 32 and new to this forum following on from the daily mail article.
My first episode (as i call them) was in March of this year, it was a saturday afternoon suddenly i felt wierd, light headed, tunnel vision and just did not feel right at all, this all started all of a sudden with no warning what so ever, i went upstairs a bit confused, came back down and asked my husband to get me some paracetamol and some water, i reached out for the glass but my vision was strange it felt as though me arms were really long and i could not grip the glass, i then started to have numbness in my leg, which spread up the right hand side of my body affecting my arm, face, tongue and also my throat i then could not speak properly and could not remember names etc, my husband rang 999 as we thought i was having a stroke, i was taken to a & e and they said it could be a aura, i was quite ill for a few days later and had no energy to move at all , we even called the doctor to the house he then arranged a ct scan which was clear. Since this first episode i have had 4 more once was when i was driving with my 2 children in the car, again my eyes are the first thing to start with having the tunnel vision and the zigzag lines then the numbness, confusion and just total weakness i never seem to have a headache or if i do its very light afterwards. I just feel so tired all the time and feel as though i'm not in my body, my concentration is terrible, my eyes ache(i know that sounds strange) and the last 2 weeks after having my last episode i have numbness in my fingers and also my face gets a numb tingly feeling. My GP won't do nothing for me but its scary!! This is just a fraction, sorry to have gone on and on xxx

kellys

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Re: Hello i'm a newby

Post by Sarah on Sat Nov 26, 2011 10:57 am

Hi Kelly, and welcome Smile You are amongst understanding people here. x
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Re: Hello i'm a newby

Post by Laura on Sat Nov 26, 2011 3:14 pm

Kelly,

From your description I can understand why you may be scared. Have you considered trying to see a migraine specialist? There are preventative and rescue meds that may help you. But don't be surprised if you have to try several before finding a treatment that works for you. People don't all have the same response to the same drugs. --Wishing you well.
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Re: Hello i'm a newby

Post by Tee on Sat Nov 26, 2011 9:48 pm

Good morning kellys and welcome Smile

Sorry you have started with these Sad It can be very scary at first - do you get any warning at all?

Have a look at this - it explains the four stages of migraine (although not everyone gets all 4) but you might spot something in the prodrome stage which you had not associated to migraine - like excessive yawning or frequent urination. It can help you to known if one is coming.

http://migrainetalk.forumotion.co.uk/t100-potential-migraine-phases-and-symptoms

How many days per month do you have migraine? If its 15 or more you will be classed as chronic and should therefore be thinking about preventatives - they will not start these drugs until you are chronic in the UK - However, your GPs reaction is not good enough - if you are below 15 you still should have been offered a triptan

There are 7 types in the UK -

http://migrainetalk.forumotion.co.uk/f28-abortive-medication-triptans

they are drug that are taken at the on set of the migraine ie at the aura stage and before the headache, in an attempt to stop the migraine progressing..... ie you could have taken one in the car and waited 20 mins for it to kick in and then you would have been safer to drive. They of course come with side effects and some work better than others - its a bit of trail and error on getting the right one - but they are the only set of drugs which can help stop one coming.

If this GP is not being helpful please do go see another one. There are cost cuttings going on and sometimes you need to push a little.

The other thing you could look at is trying to identify why they are happening -normally something triggers them - this is easy to say and sometimes a lot harder to work out:

Here is a starter for 10:
http://migrainetalk.forumotion.co.uk/t330-types-of-triggers

Its also worth keeping a migraine diary to see if there is any pattern. ie time of month or after you have been somewhere, eaten something etc...

There are also a lot of alternative stuff - with migraine the alternative stuff can give better results than the traditional medical route - it is worth remembering that there is not one medication out there that has been specifically created for the prevention of migraine - they have all been created for something else and found by accident to help with migraine prevention. So things like feverfew, butterbur, Q10, B12, Magnesium etc can help - have a look on the alternative thread.

Have a look round the site and please do fire any questions.

Tee

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Re: Hello i'm a newby

Post by kellys on Fri Dec 02, 2011 10:18 pm

Thank you very much for all the information, just looking through it all now, i'm sure i may have more questions later. Thanks very much again. Kelly xxx

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Re: Hello i'm a newby

Post by Dr Pav Khaira on Thu Dec 08, 2011 5:57 pm

Hi Kelly,

I hear these stories ALL the time, I know how scary they can be! By the way, your eyes hurting does not sound strange to me.

When you say this is only part of the story, could you tell us more please?
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Re: Hello i'm a newby

Post by Tee on Sat Mar 03, 2012 10:13 pm

Hi Kelly

Just wondering how you were getting on?

Tee

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