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New member

Post by Angelapet on Sat Jul 09, 2011 3:02 am

Hi !

My name is Angela and I live in Sweden.
I have suffered migraines for over 34 years.
I am active in my part of Sweden by running a regional
migraine group.

Regards
Angela

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Re: New member

Post by Tee on Sat Jul 09, 2011 5:13 am

Hi Angela

Welcome to the forum Smile - I hope you find it helpful Smile
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Re: New member

Post by whitzendJane on Sat Jul 09, 2011 6:47 am

Welcome, welcome, welcome...I know you will find everyone helpful and friendly on here..just ask if you need anything.

Jane
x

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Re: New member

Post by Angelapet on Sat Jul 09, 2011 7:37 am


Hi Tee & Jane
Thankyou for your warm welcome.
I forgot to add that I was born in the northeast
of England :-)
There are some very interesting posts on your website !
Although I have suffered migraine for many years I can truly
say that I am still "learning" about the subject Wink

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Re: New member

Post by Tee on Sat Jul 09, 2011 8:10 am

I feel the same way - as soon as you think you have heard it all - up pops something else Smile But knowledge is such a wonderful thing Smile
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Very true

Post by Angelapet on Sun Jul 10, 2011 5:10 am

Tee wrote:I feel the same way - as soon as you think you have heard it all - up pops something else Smile But knowledge is such a wonderful thing Smile

Yes I agree, but sad to say there are many people who have just
recieved their diagnosis ( migraine) and need help and support. Hope they find their way here Wink

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Re: New member

Post by Tee on Sun Jul 10, 2011 6:14 am

Yep - totally agree - very scary those first few months or even years Sad
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Re: New member

Post by Tee on Fri Sep 30, 2011 8:18 pm

Hi there just wondering how you are?

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Ok I guess

Post by Angelapet on Fri Sep 30, 2011 10:22 pm

Hi Tee

Thankyou for your concern !

I have Chronic Daily Persistant Headache as well as migraines
although the migraines are not so often, its this "other" headache
which is a problem. Its a problem because there are NO medications
which relieves the discomfort at all. The best medication in fact is
being able to sleep for a couple of hours.
Anyone else on this forum who has CDPH ?

Enjoy your weekend !

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Re: New member

Post by Tee on Sat Oct 01, 2011 3:00 am

Hi

Sorry your on a daily basis with this - I have daily head pain, but I was told that it was all migraine. I did find codine helped to knock it down a bit - but you are limited to how many you can take.

I have just had round 2 of the botox and it is great - ok the headache is still there - but its at an average 2 most days - still getting the big 8/9's but about once a week now:)


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Re: New member

Post by whatgoes? on Sat Oct 01, 2011 2:48 pm

Hi glad you are with our great forum, everyone is really the best. Sorry you are having a difficult time however. This may be old news but have you tried: Magnesium, Butterbur, Vit B 6 and Feverfew? There is a good book out about that combination. I really think it has helped me here recently. Like you most of those headache meds don't do a thing for me. In fact things like NSIDs (aspirin, motrin, aleve, and other similar products) actually cause me to retain water and that causes greater wide spread pain. I do hope you find something to help you. There is nothing worse than long term nagging pain, it just rips a person's personality right out of a person. Don't give up, there is always hope. Hang in there and keep us posted. Jerri

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Thankyou Jerri

Post by Angelapet on Fri Dec 30, 2011 9:00 am

whatgoes? wrote:Hi glad you are with our great forum, everyone is really the best. Sorry you are having a difficult time however. This may be old news but have you tried: Magnesium, Butterbur, Vit B 6 and Feverfew? There is a good book out about that combination. I really think it has helped me here recently. Like you most of those headache meds don't do a thing for me. In fact things like NSIDs (aspirin, motrin, aleve, and other similar products) actually cause me to retain water and that causes greater wide spread pain. I do hope you find something to help you. There is nothing worse than long term nagging pain, it just rips a person's personality right out of a person. Don't give up, there is always hope. Hang in there and keep us posted. Jerri
Thankyou very much for your comforting words and advice !
Happy (painfree) New Year :-)

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Re: New member

Post by Laura on Mon Jan 02, 2012 6:56 pm

Angela, I've read about chronic Migraine, Chronic Tension Type headache, New Daily Persistent Headache and Hemicrania Continua. Is Chronic Daily Persistent Headache the same as one of those or something different? I have headaches everyday. About once a week I have a more difficult full body attack. It is my understanding that it is either a chronic migraine or a chronic type of trigeminal autonomic neuralgia (TAC). However, I have not been able to find any info on a chronic TAC.
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