hi im chris

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hi im chris

Post by Chris on Fri Jul 08, 2011 9:36 pm

i live in glossop derbyshire and am 46 years old. iv suffered with migraine since i was 12. when they first started they were really bad and frequent i spent 3 months off school with them. as i got older they became less frequent until there were gaps of a couple of years between attacks YIPEE! then last year had 2 attacks whilst on holiday in spain the sortof attack you would say you d get from winding down then a nice respite till january this year when holy hell has since broken loose.every couple of weeks iv been off work with attacks lasting from a day to a week long some attacks in multiples 2 sometimes 3 really close together.i get the full range of symptoms ,visual disturbances,blind spots,numb parts of the body which recurrs,sickness depending on how much iv eaten that day and a headache so painful it makes me cry.then the hangover from hell and i dont drink!im currently back seeing my doctor whos put me on 160mg propranolol each morning,10mg amitriptyline at night, 50mg once or twice when attack happens of sumatriptan. and 1or 2 500mg of co codamol to recover on afterwards. i drive buses for a living and my last few attacks, one last tuesday have been just as i was about to start my shift.luckily work mates have been with me and have seen how bad they are getting.the company i work for is really understanding and are aware i have no control over them.each day as it comes.
so thats me,sorry about the essay
hope you all are keeping well.

Chris

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Re: hi im chris

Post by Sheena Hulston on Fri Jul 08, 2011 9:47 pm

Hi Chris
So sorry to hear you have got so bad so quickly. its good to hear your work is so understanding as well.
We are all hear to help and have a chat and to lend an ear whenever.
Some on here have always had migraines and some, like you, have had them come on quick and severe, me being one of the latter, so I know how shocked you must feel.
Speak soon
Sheena x
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Re: hi im chris

Post by Tee on Fri Jul 08, 2011 9:59 pm

Hi Chris and welcome to the forum Smile

Sorry to hear they are coming more and more, as Sheena has said you are amongst friends Smile

Have you been able to work out any of your triggers?

And are you finding the drugs of any help?

Tee
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Re: hi im chris

Post by Sarah on Fri Jul 08, 2011 10:18 pm

Hi and welcome. Smile

It must be very difficult trying to manage with your particular job, although great to hear that work is understanding.
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Re: hi im chris

Post by Chris on Fri Jul 08, 2011 10:23 pm

hi,thanks for the replies.i think i get the sympathy vote from work because the bosses daughter suffers too.we both had an attack on the same day 3 weeks ago i was in work 5 minutes and she saw me in the evening she started too.that day it was extremely bright.since january iv almost permanently wore my prescription sunglasses even when its been dull.last tuesday was the same bright again off home i went.iv added to the comment on facebook about tesco too.doesnt mean itsgonna happen every bright day either.
as for other triggers they are as random as the weather . iv kept diaries shown them to the doctor and nothing stands out well not yet and iv been at it 34 years now.
theres stuff i stop away from,chocolate(cant stand the smell now and can tell if you ve had some even hours ago) cheese , coffee, tea,citrus fruits fresh oranges lemon lime ,sweetcorn thats a killer for me along with oranges.
but if you dont dice with death and still suffer well its anybodys guess.
the drugs can take the edge off an attack which is good but im still out of action. bed for hours on end is what most of us have to resort to
chris

Chris

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Re: hi im chris

Post by Katie on Fri Jul 08, 2011 10:26 pm

Hi ya-hope you find the forum useful.
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Re: hi im chris

Post by Tee on Fri Jul 08, 2011 11:06 pm

Indeed Chris - my bedroom is my sanctuary Smile and was even decorated in browns to make it darker (x to hubby)

Keeping a diary is a great idea and whilst it may seem a pain, it can over time give some results. There is a list of triggers on here which you might find useful?

http://migrainetalk.forumotion.co.uk/t330-types-of-triggers

I also note you have aura, so you may find this useful to http://migrainetalk.forumotion.co.uk/t250-types-of-aura

Also, if you have 15 days of migraine or more a month, you have hit what they call chronic level and it may be time to start thinking about a preventative med - of which there are loads - the first step to going down that route is to get a referral from your GP to a 'headache' neurologist - here is a list of the hospitals and clinics in the UK. http://migrainetalk.forumotion.co.uk/t96-migraine-clinics-in-the-uk or http://migrainetalk.forumotion.co.uk/t95-neurological-departments-in-nhs-hospitals you need one of these as experience has shown a normal neuro is just not good enough.

Sorry if I have bombarded you

Tee


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Re: hi im chris

Post by Chris on Fri Jul 08, 2011 11:31 pm

Don't apologise ha ha being bombarded with info is sometimes the best way to find out what works and what you can do . When I get home tonight I shall look at those links,just not the same on a mobile. Thanks for them though.Gotta say at this point my Mrs has been brilliant and has put up with allsorts.

Chris

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Re: hi im chris

Post by Tee on Sat Jul 09, 2011 12:59 am

That's brilliant Chris - having another half that understands makes ALL the difference - she is welcome to join to Smile sometimes having someone close to you doing the reading for you helps Wink

Have a good day at work
T
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Re: hi im chris

Post by whitzendJane on Sat Jul 09, 2011 1:06 am

Hi Chris welcome to the forum..there's loads on here to help you find the best way of managing your illness. Tracey works really hard ferreting out new research and info for us all (x to Tee).

Use us if you need a laugh, moan or have a question.
Everyone is really helpful and friendly on here so please keep in touch.

I hope you feel better soon and send my best regards.

Jane
x

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Re: hi im chris

Post by Chris on Tue Jul 12, 2011 10:15 pm

Its a good job im taking that amitriptyline at night.Got home at half past midnight full of the joys of spring took that next thing i knew its 3am.Best couple of hours sleep iv had since january.

Chris

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Re: hi im chris

Post by whitzendJane on Wed Jul 13, 2011 12:04 am

It 's a big help if you can get regular, good quality sleep. Although 3 hours doesn't sound much LOL

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Re: hi im chris

Post by Tee on Fri Sep 30, 2011 8:26 pm

Hi there just wondering how you were doing, has the sleep got any beter?

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Re: hi im chris

Post by Chris on Mon Oct 03, 2011 7:55 pm

hiya tee.not doing too bad at the mo. felt a bit rough over the weekend with a headache but that was down to getting too hot. as for sleeping thats averaging out to about 4 or 5 hours a night now. wish it was a bit more though.
hows things with you?

Chris

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Re: hi im chris

Post by Tee on Wed Dec 14, 2011 9:18 pm

Hi

Sorry taken a while to get back to you - have been quite a few weeks, what with all the press activiy and I have been hit by a few biggies.......... But saw my consultant and we are looing at doing the botox again in the new year - but also adding in a load of supplements to Smile

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