Hello from Leicester

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Hello from Leicester

Post by Guest on Thu Jun 30, 2011 7:37 am

Hello all,
I've suffered from migraines for approx 14 years.

I don't know if anyone can relate to this, but I have got so used to them that I don't even quite realize that I'm having the milder ones with a tensed head and general fuzziness which causes a touchy personality with this often preceding or proceeding a full on proper migraine. I grew up being taught not to whinge about illness though so it may just be me having a stern pain thresh hold due to my upbringing?

For my full on proper migraines I am now for the first time taking prescribed drugs in the form of Sumatripton which seem to work within half an hour at the minute.
For years I took Migraleive which I bought myself even though off work sick with all sorts of illness but they have got that bad lately and times are hard so I now get them on prescription, that only we have to pay for in England!!! As they are now free in Scotland, Ireland and Wales!

I think mine may come with suffering from stress and maybe from my IBS as well which sounds hard to believe on the later one but I think it can do on researching it deeply.

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Re: Hello from Leicester

Post by Katie on Thu Jun 30, 2011 7:25 pm

Hi Ingy,
Glad the sumatriptain helps.
If your not eligible for free prescriptions in the UK it might help to apply for a NHS pre-payment certificate . See here http://www.nhsbsa.nhs.uk/1127.aspx. Your local pharmacist should also have details. I buy an annual cert' so I no longer stress over prescription costs.

Its a good idea to try and keep a migraine diary so you can try and work out what triggers may contribute to setting migraines off. Not everyone has clear triggers but its worth checking if you do as then you can choose to avoid them if you can.

Most people with migarine tend to try and grit their teeth and carry on as to most people they are 'just a headache'. They are covered by various disability at work laws now so if you have work envioronment related triggers it may be possible to request for reasonable adjustments.
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Re: Hello from Leicester

Post by Tee on Thu Jun 30, 2011 7:29 pm

Hello there are welcome Smile

I am sorry you have been suffering for so long, but you are not alone, the majority of the people of here started with migraine when they where in their teens and most are chronic now. - So you are amongst friends Smile Do you know what type of migraine you have?

I am almost in a constant state of migraine and have aura and a mussy head everyday, like you, after a time, I got used to a certain level of pain and even on a scale 3 / 4 I can cope - its when it hits the 8 / 9 I need to hit the pills.

How many are you getting per month? I ask as there is a lot of preventative medications out there which may be of help along with the Sumatripton. Smile

I know what you mean about the costs of prescriptions and it does not help that they will only give 6 pills at one time and sometimes only 3!

It is not hard to believe the IBS link hun - there is a link to migraine and the tummy and when we did a poll on here to other linked illnesses IBS came out top - one tip there is Andrew Salts - I only found out about this from here a few weeks ago and they really do help settle the IBS. You just take one teaspoon full with some water before bed Wink


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Re: Hello from Leicester

Post by Sarah on Thu Jun 30, 2011 8:27 pm

Hi and welcome. You're in good company here. Smile

I also suffer from some level of IBS and also upper stomach pain. In my case, I get so much gastric stasis from the migraines, that I think a slow stomach is at least partly an issue to me through my whole body. One thing I've found with that is that something sweet helps the stomach empty faster. It's not great for the teeth, but helps the tum!
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Re: Hello from Leicester

Post by Sheena Hulston on Thu Jun 30, 2011 9:28 pm

Hi Ingy there is a link here I get IBS as well, but I know its cream and fatty foods that kicks mine off, I need to see if it makes the migraine worse as well I quess! Just thought of that DOHHH.
Glad you found the site and agree with all the rest.
Look forward too chatting... after 4 good days just been hit with a size 10 boot in the head last night and recovering slowly from the worst noght in a long time talk soon x
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Re: Hello from Leicester

Post by Tee on Thu Jun 30, 2011 11:02 pm

Oh SHEENA - I am so sorry to read that you where on such a good run Sad Hug4
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Re: Hello from Leicester

Post by Guest on Sat Jul 02, 2011 2:14 am

Thanks Tee admin and others for the welcome and here is the best ever help I have had for IBS and it works! as I'm following this diet and it has been a great help I hardly ever get the severe symptoms of IBS now due to this diet and I've tried a few in the past that all failed.
The inventor of the diet has suffered with it for a life time and has studied it scientifically, I've spoken to him personally on facebook and all seems genuine, not trying to sell us anything etc

http://www.ibsexplained.com/

Start with the 'Really Easy Anti-IBS Diet' First and then progress to his other diets if need be http://www.ibsexplained.com/the_really_easy_anti_IBS_diet.html

I would urge admin to maybe put this link up on the site if there have been high numbers polled in connection with IBS and Migraine.

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Re: Hello from Leicester

Post by Guest on Sat Jul 02, 2011 2:21 am

I do not know what triggers my migraines yet and do not know what helps them go away other than Sumatripton at the minute.

My migraines seem sporadic and I do not know what type of Migraine I have as I haven't looked that deep into it in the past as doctors weren't very helpful in the past and I have been even more pre-occupied with IBS in recent times but this is sorted to a great deal now although always seem to have the IBS lethargic symptom still to a sporadic extent.
With my IBS sorted out a great deal though, I could maybe start looking into my triggers of Migraine now.

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Re: Hello from Leicester

Post by Tee on Sat Jul 02, 2011 4:21 am

Hi

Thanks for the IBS diet - I worked out mine was linked to wheat and gluten a long time ago and now only eat these in small bits.

With regards to the type of migraine - have a look at this - if one does not stand out - tell us what you experience when a migraine attacks and we may be able to help. Knowing the type of migraine seems to help.

http://migrainetalk.forumotion.co.uk/t185-types-of-migraine

The other thing you my find useful is to keep a migraine diary.

http://migrainetalk.forumotion.co.uk/t223-migraine-diaries

At this stage you may wish to write up what you eat too - this may give you an insight into triggers - of which there are many

http://migrainetalk.forumotion.co.uk/t329-what-s-really-triggering-migraine-pain-researchers-identify-more-than-100-potential-triggers

If you are having more then 15 migraine days per month, you need to think about taking a preventative and the best way to do that is to get a referral to a headache neurologist.

http://migrainetalk.forumotion.co.uk/t96-migraine-clinics-in-the-uk

Hope this helps

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Re: Hello from Leicester

Post by Guest on Sat Jul 02, 2011 7:31 am

Thanks Tee,
On first glance mine look like 'Classical' but maybe with a touch of 'Basilar artery' migraine which according to this article suggests I may be a young adult women or adolescent girl!!!? :-) although those symptoms may be being confused with stress/anxiety panic attacks which I have now and again.


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Re: Hello from Leicester

Post by Tee on Sat Jul 02, 2011 7:47 am

Do you have a consultant - its one to ask him about. If it is Basilar then the way you hold your head is very important as you can kick one off by simply bending your head. I know people who black out with those too. Very scary.

I am not sure if you know but there are a lot of things which count as aura - its not just visual stuff.

You may find this of interest. http://migrainetalk.forumotion.co.uk/t250-types-of-aura

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Re: Hello from Leicester

Post by Guest on Fri Sep 02, 2011 3:37 am

Made a break-through as mentioned on here before (Can't find that post now?) turned brightness down on my PC which i use daily and for long periods of time often and I went 5 days without a migraine and then only had an average headache for the last two days, so that's two headache days out of a week as new progress. The average headache may have come from long usage of the PC and some sunlight that I caught for a short while over today, so I will try and cut time on the PC and get some sunglasses! :-)

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Re: Hello from Leicester

Post by Tee on Fri Sep 02, 2011 3:41 am

I saw that post - so pleased for you Smile

You may find a colour eye test of some use - there is a long thread about the use of different coloured lenses helping some migraine people - i will try to find it for you Smile

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Re: Hello from Leicester

Post by Tee on Fri Sep 02, 2011 3:41 am


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Re: Hello from Leicester

Post by Guest on Fri Sep 02, 2011 8:49 pm

Thanks Tee.

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Re: Hello from Leicester

Post by Guest on Fri Sep 16, 2011 7:26 am

Sadly the headaches and migraines came back as they only slowed a little as I was not really using the computer and watching TV as much as I used to.
and the plot thickens though as I found out this week that I was wrongly prescribed far too strong lenses Shocked in my previous Eye Test approx a year and a half ago and this is where my very regular major migraines and headaches have been seemingly coming from in recent times! Rolling Eyes
I am looking at a case of medical negligence which solicitors have taken on. Twisted Evil

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Re: Hello from Leicester

Post by Tee on Fri Sep 16, 2011 10:23 am

wow - that is very interesting.

Have you got the correct lenses now - will be interesting to see what effect they have?


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Re: Hello from Leicester

Post by Guest on Fri Sep 16, 2011 9:14 pm

I should get them today or this Monday coming. I put my old glasses in to have the lense changed and keep my old frames to keep costs down.
I haven't hardly had headaches or migraines, far less anyway for the last 5 days without any lenses being used as I have no back up glasses. I start to get headachey when squinting too much if use the computer or watching TV too much which would be expected with no lenses.

Yes, it will be interesting to see what happens with my new lenses scratch

I also couldn't go straight back onto the correct prescription due to how strong my old lenses were due to being hugely wrongly prescribed, as the huge change will bring on headaches too! Shocked
so this time my new lenses will be nearly the correct ones and then I go back in 6 months to hopefully get the final correction made to the full on correct prescription.

What a headache it all is! excuse the pun. Sad

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Re: Hello from Leicester

Post by sherene on Fri Sep 16, 2011 9:59 pm

Hi Ingy,

Glad to hear your medication is working for you x

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Re: Hello from Leicester

Post by Guest on Fri Sep 16, 2011 10:03 pm

Hello Sherene,
it's not medication at the minute, this is without my glasses! the glasses that were wrongly prescribed too strong, which is seemingly give me huge headaches and migraines!
I get my new lenses today or in a few days time and shell see how I go then?

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Re: Hello from Leicester

Post by Tee on Sat Sep 17, 2011 2:40 am

wow - I hope they have said sorry - I would have expected them to give you the new lenses free, since they have made such a mess up - did they say how that could have happened?

But on a plus, its great you have worked out one of the main triggers - and changing glasses is a simple thing to do - just a little time to adjust.

But, still there is a negligence case there Rolling Eyes

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Re: Hello from Leicester

Post by Guest on Sat Sep 17, 2011 3:16 am

Tee,
it was a case of me going to a different Optician for an emergency eye test due to my headaches and migraines that I found that my previous Optician (Spec savers) had made a huge mistake with my last prescription Shocked
My new optician gave me this info.
Spec Savers do not know that I have a case of medical negligence against them yet and it was a good job that I decided to just go to a local Optician as an emergency.
i did this because when I rang Spec Savers and let them know about the headaches and migraines and asked for a test they were very unhelpful and said that I am not due another test on the NHS till next year, sorry no can do!
This was very disappointing but the disappointment soon turned to anger when I also found out that they had wrongly prescribed me in the past! Evil or Very Mad

I have now just a few hours ago got my new lenses that are nearly the right prescription but can't be yet as it would be too much of a change and would give me headaches again apparently! So I am being weaned onto the correct prescription of lenses slowly.

I will see how it goes with these now.

Yes a case of medical negligence is now being taken on by solicitors

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Re: Hello from Leicester

Post by Guest on Tue Nov 22, 2011 9:52 pm

Since my change of glasses from the wrongly prescribed to the correct ones, my migraines have gone for a decent while for now at least, so it very well have been the glasses issue with me. I will keep you posted.

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Re: Hello from Leicester

Post by Tee on Wed Nov 23, 2011 1:01 am

Oh that is good news...... Smile

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Re: Hello from Leicester

Post by whitzendJane on Wed Nov 23, 2011 11:27 pm

Wonderful news..I am so pleased for you

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Re: Hello from Leicester

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