What are people's thoughts/experiences of caffeine?

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Re: What are people's thoughts/experiences of caffeine?

Post by Sarah on Tue May 22, 2012 5:41 am

Just to update on this, I've found that I can only leave the tea for 3 minutes. I've forgotten the statistic, but I think it means I'm losing roughly half of the caffeine.

Anyway, on Saturday I went out shopping and started to feel awful virtually immediately. Immediately the fear kicked in of being away from home with a horrible migraine. Before the migraine really got going, I went and bought myself a cup of tea, and sat quietly with it. I have to say, it really took the edge off it, and the migraine never properly got going as a result. This was obviously fantastic.

I've found this once before, but only if I am cutting the caffeine down or out altogether. I so wish I could find a decent alternative to tea. I quite like the redbush tea, which is caffeine-free, but it's a phytoestrogen, which messes with my migraines too.
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Re: What are people's thoughts/experiences of caffeine?

Post by Laura on Thu May 31, 2012 3:11 am

I am thinking of dropping caffeine all together. I am about to lose my mind from fatigue. My insomnia has gotten so bad. So I thinking I'll wean myself off of caffeine entirely. Right now I drink one or two cups of coffee in the morning and afternoon. I'm thinking I'll switch to decaf with just a bit of regular coffee added. Then I'll drop the regular all together. Then because decaf still has some caffeine - I'll switch to an herbal tea after that. Or should I go cold turkey? I understand it that either way - weaning or cold turkey - it will make my migraines worse at first - but the insomnia is making my migraines and headaches so bad. I need to try something. Any advice for going caffeine free?
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Re: What are people's thoughts/experiences of caffeine?

Post by Sarah on Thu May 31, 2012 3:22 am

Ooh no, never go cold turkey with caffeine. Your head will be awful. My advice is get a baseline first of what you drink, then systematically cut down incredibly gradually.
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Re: What are people's thoughts/experiences of caffeine?

Post by Tee on Thu May 31, 2012 6:23 am

I agree with Sarah - weaning much nicer route to take X

Have you ever tried Amitriptyline? - its often used as a migraine preventative but also as a muscle re laxer and sleep aid - it is with this that I learnt to sleep again - I increased the does until I could sleep through and then over time weaned off it - took about 8mths in total x

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Re: What are people's thoughts/experiences of caffeine?

Post by Laura on Thu May 31, 2012 8:27 am

Thanks for the advice ya'll. Maybe I could step it down over a 2 or 3 weeks.

I took amitriptyline years ago for another purpose. I'll ask about it.
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Re: What are people's thoughts/experiences of caffeine?

Post by pīwakawaka on Thu May 31, 2012 9:00 am

When I was looking for possible food triggers, I went cold turkey on caffeine, alcohol. tyramine, preservatives, citrus and dairy all at the same time. The migraines did increase slightly for about a week and then gradually tapered back to "normal". I kept on that diet for not quite 3 months before gradually adding items back in. Coffee was first Smile

The strange thing was that the migraines decreased for a short while before returning to "normal". There was no change as the other foods were returned to my diet.

I really enjoy a regularly variable diet and I found the restricted diet didn't do much for my enjoyment of life. If I had found that one or more of the foods had made a significant difference, then I would have given them up, although probably with some reluctance. As it was I was really glad to return to a diet of "everything in moderation", although I certainly do consume far less processed food than I used to.

I was quite surprised that I didn't really suffer much from coffee withdrawal as I had been told by many that it would be a difficult task. But I was really pleased to be able to resume drinking it.

These days I drink organic coffee wherever possible.

I know it differs from person to person, but you may be able to cold turkey. Try it for a day and see what happens. Then try it for another day. Don't commit yourself for a fixed term. Take it one day at a time. If you find it becomes too difficult, switch to plan B (wean off gradually).

I've heard this tip from several people: Coffee is a stimulant, but in small doses it has the opposite effect. The suggestion is to give up coffee during the day and have a weak cup shortly before going to bed. It's supposed to help you go to sleep. I haven't tried it myself, so I can't vouch for it.

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Re: What are people's thoughts/experiences of caffeine?

Post by Tee on Fri Jun 01, 2012 8:00 am

Good luck xx I do hope it helps you

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Re: What are people's thoughts/experiences of caffeine?

Post by Colin on Tue Aug 28, 2012 4:38 am

I stopped drinking coffee and tea when I had my last chronic episode. What prompted it was reading that a particular Primary Care Trust would not prescribe anti-migraine drugs to people who drank coffee as they were de-sensitised to the effects caffiene would otherwise have - enhancing the effects of painkilling drugs.

I really did used to drink loads of strong coffee and coming off it did make my headache worse for 2 or 3 weeks. I don't know if it helped bring that episode to an end or not, but after the withdrawal period I began to sleep better and was generally much calmer.

I now drink decaffeinated coffee but very occasionally (say once every few months) will have a cafe latte, which is great, but makes me very whizzy and a bit manic so not so good for others around me Smile

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Re: What are people's thoughts/experiences of caffeine?

Post by sarlyka on Tue Aug 28, 2012 4:54 am

I don't drink coffee at all. I have only had a very occasional one - about one or two a year since about 20 years ago. I don't like coffee. I drink tea but haven't tried switching to decaf.

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Re: What are people's thoughts/experiences of caffeine?

Post by Sarah on Tue Aug 28, 2012 5:29 am

I'm currently trying to get into white tea, as it has supposedly got lower caffeine levels naturally, along with less fluoride. It's OK I guess, but not a patch on the regular kind.
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Re: What are people's thoughts/experiences of caffeine?

Post by Colin on Tue Aug 28, 2012 6:53 am

I tried decaf tea but it tastes really bland to me so stick to the decaf coffee or herbals. A friend of mine used to drink jasmine tea, which is green tea with jasmine flowers. Not really sure if it has less caffeine in it though.

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Re: What are people's thoughts/experiences of caffeine?

Post by Lesley anne on Tue Aug 28, 2012 12:46 pm

Green tea with mint is a nice alternative, even though I only have one cup a day. I'm trying really hard to stick to bottled water but.., yukk"......

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