Types of aura

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Re: Types of aura

Post by Tee on Fri Mar 23, 2012 9:34 pm

Smile I am pleased this has helped Nekoha - a lot of people think aura is just visual stuff - I did too for years.......... when I was a kid I was told you had to have a one sided headache to have a migraine!!! So not true - and yes I agree patients have to take control of this - all doctors are not the same and I find even they know the stuff, they are not very good at telling the patient....

Have a read through this:

http://migrainetalk.forumotion.co.uk/t250-types-of-aura

You will not have all of these - but you may find you have more 'aura' than you think?? Let us know?

Onandoffagain - I love the idea of writing down stuff under headings Smile

Tee x

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Re: Types of aura

Post by Tee on Fri Mar 23, 2012 9:35 pm

Oh and yep I agree ammonia is one - a lot of people get burning or burnt toast too Sad

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Re: Types of aura

Post by pīwakawaka on Sun Mar 25, 2012 1:51 pm

Burnt toast definitely. Another thing I get it hearing the phone ring or my wife calling my name. It's not until I get a blank look from my wife when I go and ask her "Who was that on the phone?" or "What do you want?" That I realise it was an illusion. Embarassed

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Re: Types of aura

Post by jintyjen on Tue Jul 24, 2012 9:56 am

Hi, i've had derealization, depersonalization, alice in wonderland another visual auras constantly for the past 11 weeks. ive always had the usual migraine aura then headache then tiredness migraines but they were far between and only lasted a few hours at most. 4 months after having my son I had a panic attack on holiday and ever since my migraine hasn't let up. Has anyone had relief from the visual side of a migraine with medical treatment? I can cope with the headache but would like some hope my vision will improve so I can get back to being a full time mummy. Any advice would be appreciated! P.s have my first neuro appointment on friday. Smile

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Re: Types of aura

Post by Dr Pav Khaira on Tue Jul 24, 2012 7:21 pm

Good luck with the neuro appointment! It is possible to get in control of migraines, BUT everyone responds differently. Keep hope as there are lots fo things that can be done.

Can you tell us a bit more history about your migraines?
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Re: Types of aura

Post by Tee on Thu Jul 26, 2012 8:19 am

Hi Jintyjen and welcome x

I had visual aura for 3 years ... its has gone down over the years 0 but it was a slow process and I am not really sure how it went down........ I think it was just a matter of getting my migraine plan right......... trigger management is a biggie and something you do need to look at - as Pav has said we are all very different when it comes to meds but we all have triggers - keeping a diary will help to work these out - but it takes time.

Good luck on Friday - do take someone with you and give the permission to talk for you..... write down a list of questions and make sure they other person asks for you is you cannot - we have all been there and there is nothing worse than getting in there and migraine brain kicking in....... Hug

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Re: Types of aura

Post by jintyjen on Mon Aug 20, 2012 12:50 am

Hi, im sorry ive not been on to reply, ive not been really well enough to look at a computer screen for more than 5 minutes. Smile
The neurologist was more use than a chocolate fireguard. He thinks i have tension headaches with the odd migraine and for 'my' peace of mind he has sent me for a ct scan. He also thinks that its lack of sleep which is causing it all and as my fingers were tingling with a migraine at the time he thinks I have carpel tunnel syndrome which is keeping me up at night...nothing to do with my teething 7 month old son Rolling Eyes He doesnt want to see me for another 6 months. My gp has put me on 5mg of nortiptyline and i am scared to try it incase it makes me even more exhausted and spacey.

Sorry for the novel above, this has just been a long 4 month rollercoaster of constant visual snow, anxitey and derealization, the headache pain doesn't really appear for long and is really manageable its the other effects which is getting me really down.


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Re: Types of aura

Post by Tee on Mon Sep 03, 2012 8:05 am

Never be sorry here - we have all been there.............you can ask your GP to see another nero - do not been scared to sack them hee hee

Do try the Nortiptyline - I started my jounery on Amitripaline from the same group and it did give me the ability to sleep again........ whilst it did not help with the migs or the aura - I was less tired in the end.......xx

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Re: Types of aura

Post by Ruth Robison on Mon Jan 27, 2014 3:23 am

Oh my goodness!! Wow!! I get the majority of all the aura symptoms described very frequently, but was completely unaware that's what most of them were until now!! I have experienced so many of them since I was a child and just thought they were 'normal' and everyone must get them! So interesting and will hopefully help me to get a proper diagnosis quicker, thank you!

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