General discussion - Epilim, Topamax, Neurontin

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Re: General discussion - Epilim, Topamax, Neurontin

Post by Tee on Fri Jun 24, 2011 6:57 pm

Oh big hugs hun Hug

Sorry this one is not settling on you, I cannot remember how long Eplim took to kick in with me (not that it did a great deal anyway) a chat to the nero is a good idea. Smile

btw The good thing with Eplim is if you come off it it is out your system in a matter of days.

Hope you feel a little better today
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Re: General discussion - Epilim, Topamax, Neurontin

Post by Sheena Hulston on Fri Jun 24, 2011 9:10 pm

Oh babes the struggle with new drugs I hate it, You have to wean off old ones wean on new ones then wonder if its side effects or just bad days!!! Its a struggle.
Really feel for you.
Would give you a really big hug and cuddle and make you a cuppa if I could.
It all works out though.
XXXXXX
Very Happy
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Re: General discussion - Epilim, Topamax, Neurontin

Post by JACQUELINE TEW on Fri Jun 24, 2011 10:16 pm

Thankyou Tee and Sheena ,have slept a lot head feels a bit clearer today after lots of sleep just feel washed out now ,will let you know what neuro says ,but at least i feel morelike smiling and laughing today which is always a good sign with me bcos when those 2 things go i know its bad . Hope you are all having good days xxxxx
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Re: General discussion - Epilim, Topamax, Neurontin

Post by Tee on Sat Jun 25, 2011 1:53 am

Very Happy So pleased you read you have your smile back Very Happy

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Re: General discussion - Epilim, Topamax, Neurontin

Post by robbo on Thu Nov 17, 2011 7:12 am

tried topomax and i reacted with them ....
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Re: General discussion - Epilim, Topamax, Neurontin

Post by Laura on Thu Nov 17, 2011 2:37 pm

In the US Epilim is known as Depakote. I've known 2 others who have taken it and have put on much weight. Depakote is one of the few drugs I've refused to take for that reason.

Topomax: My neurologist upped the dose until I could not think clearly or focus on a task. It did not prevent migraine attacks so we weaned me off of it.

Neurontin: I've taken both Neurontin and another similar drug called Lyrica (pregabalin) for years to control the pain from a peripheral neuropathy. Neither have caused much in the way of side effects. I've been on the Lyrica most recently. However I recently stopped it because I was trying to reduce my medical expenses. I decided I could do without the Lyrica and just deal with the pain - if I'm not on my feet a lot its not too bothersome. However I've been getting migraine attacks more frequently over the last month. The doc thinks the Lyrica may have worked somewhat as a preventative, so I'm going back on it.
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Re: General discussion - Epilim, Topamax, Neurontin

Post by sarlyka on Tue Aug 14, 2012 3:31 am

Over the last 3 years or so, I've tried Nortriptyline, Tramadol, Pizotifen, Topiramate, Pregabalin and Epilim. None of them worked. I was on the Pregabalin for the longest and it didn't help my migraines at all. The others gave me horrendous side effects which left me more or less zombie-like.
I've just been to see a new specialist and he's sent me a prescription for Gabapentin! At the end of the consultation, I went home feeling he had listened to me and understood the difficulties I have. He asked if any medications had helped and I said they hadn't, listing some of the worst. Now I feel he hasn't listened at all and hasn't read my notes.
If I don't take the Gabapentin, I'll be accused of not trying and not wanting to get better. If I do take it, it'll either not work or the side effects will be horrible. I don't know when I will next see this specialist - could be weeks or months.
As always, I raised my hopes only to have them dashed again Sad

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Re: General discussion - Epilim, Topamax, Neurontin

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