Newly diagnosed

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Newly diagnosed

Post by CMJ on Wed Jul 09, 2014 10:02 am

Hi everyone, I am a mum of 3 little ones and newly diagnosed with chronic migrane.  Last September I woke in the middle of the night with the worst headache I have ever experienced.  After nearly three weeks of going backwards and forwards to GP/A&E I was finally admitted to hospital with viral meningitis and stayed in for 11 days.  Since then I haven't had a headache free day.  

I have recently seen a neurologist who specialises in headaches and he thinks that the meningitis has triggered the migranes.  He has given me some headache diaries to complete for the next three months before my next appointment but didn't explain much about them.  They are fairly basic but they do ask you to say how many days you have migrane and how many days headache.  My head hurts everyday  though sometimes I can just about function.  However I am getting lots of other symptoms which from reading your posts might be aura.  I am fatigued, concentration is poor, I have word finding difficulties, rubbish memory, my head constantly is sore to touch and feels bruised, and I feel sound and movement ( of things and other people, not just me) as pain, also intolerant of noise and photophobic.  Does this mean that I am having a migrane every day?  Very confused!  Any advice would be great...Thanks.

CMJ

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Re: Newly diagnosed

Post by pīwakawaka on Wed Jul 09, 2014 8:09 pm

Hi CMJ,

Sorry that these forums is not as active as they used to be, but I hope you will find it helpful.

It is possible that what you experience is a migraine, but that diagnosis needs to be made by an appropriate medical professional.

I'm fortunate that pain is not a major factor in my migraines, but I have some form of migraine for about three weeks of every month.

I did have a period about 15 years ago when I had a persistent migraine that lasted for about five or six months. I was unable to work, was constantly fatigued, very poor motor skills and cognitive skills. I had a constant mild headache so never recognised the condition as a persistent migraine. It was by luck that I had an extremely bad migraine attack after six months that hospitalised me. The treatment for that attack got rid of the persistent migraine as well. I was put on a regime of Sandomigran after that which kept the persistent migraine at bay and reduced the number of acute attacks.

Keep the diaries as detailed as possible. If they don't have room to describe every symptom you experience, then maintain an additional diary. It's better to provide too much information than not enough.

I wish you well and hope that you can find a way to lessen the burden of the symptoms you are experiencing.

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Re: Newly diagnosed

Post by Sarah on Wed Jul 09, 2014 9:43 pm

Hi and welcome.

Sorry to hear how much you have been suffering. I'm also one that suffers with some degree of pain every day, but mine is very hormonally-related, in that I normally have one far better week a month, and one truly terrible one.

It's interesting that a virus should be such a trigger, because of my experiences as a teenager (many years ago now!) I had migraines with aura, but not too frequently (one every few months or so), until I was 16. I had a bad bout of flu, and immediately afterwards started suffering from chronic daily migraine, this time without aura. It was too much of a coincedence for the flu not to be a factor.

There is a chance that time might just sort it out for you, but a preventative medication might put a stop to it all, or at least get it back under control. It's important not to overdo painkillers or other medications to treat the migraines themselves when they happen, or you can end up with medication overuse headache. This is definitely something that has happened to me over the years, as I didn't realise it existed so many years ago now.

The symptoms you suggest don't necessarily sound like aura to me, but they do sound like common symptoms of migraine, if that makes any sense!
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