I'm so happy to have found this site!

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I'm so happy to have found this site!

Post by LucyBee on Wed Oct 02, 2013 12:33 am

Hello everyone,

As the topic title suggests, I've been feeling rather alone with my migraines and all that comes with them. I've been 'struggling with life' since I was 13 - and was diagnosed with depression and psychosis. I would hide in my room, curtains shut. Couldn't bear sound, crowds felt like I was caught in a raging sea. I didn't eat as I constantly felt sick. I complained of pains and tiredness the doctors could find no cause of. I saw neurologists, ENT specialists, cardiologists.... This carried on, and on, I left education at 16, and spent the next 5 years on the booze.

At 21, I picked up somewhat - studied with the Open University, got a part-time job as a cleaner and put down the bottle. (What a difference that made!) Soon, I was offered a decent full time job, working in an office. That was just over a year ago.

Suddenly, 5 months ago I had a huge drop in vision, lost the use of my right arm and ended up in a&e. The ophthalmology department referred me to the neurologist - who told me he suspected I was suffering from hemiplegic migraines. In fact, it was likely to have been them all those years ago when I was stuffed full of anti-psychotics for being so withdrawn.

I had an MRI a few weeks back, and get the results later in October. I'd never heard of a hemiplegic migraine, to be honest I still know very little about migraines. But I've felt so confused and alone since that neurology appointment. Everyday has felt like a struggle for so long, pain, tiredness, disorientation that is tricky to describe.

From this forum, I really hope I can get some tips and advice on how to live the best I can, find ways to keep smiling, retain my job, while meeting new people. Just finding this forum has made my week, thank you!

LucyBee

Posts : 3
Join date : 2013-10-02

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Re: I'm so happy to have found this site!

Post by Sarah on Wed Oct 02, 2013 5:36 am

Hi and welcome!

I don't have the hemiplegic sort of migraines myself, but if you have a read around the forum, hopefully you'll find some helpful information. I think just having a diagnosis can be helpful in itself, after so much uncertainty. I really hope you get this soon.
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Sarah
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Join date : 2011-04-21
Location : Essex, UK

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Re: I'm so happy to have found this site!

Post by LucyBee on Wed Oct 02, 2013 8:17 am

Thank you Sarah

LucyBee

Posts : 3
Join date : 2013-10-02

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