A hello from a newbie seeking answers :)

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A hello from a newbie seeking answers :)

Post by Freya76 on Wed Jan 23, 2013 4:02 am

Hi, I am 36 years old and have been suffering with migraines ever since the day I went into labour with my oldest son, 16 years ago. I suffer with two different types of migraine, I am lucky enough to know what triggers my migraines, I get the normal common flashing lights followed by head pain and nausea, these are triggered by my hormones (normally once a month). They can appear out of the blue and can be quite disabilitating as I have trouble seeing when I get them.

But it is my second type of migraine I get which I'm completely confused about, these started up about 8 years ago and I get them straight after drinking coffee or energy drinks. They come on instantly, I get slurring, feeling spaced out, unable to coordinate properly, sensitivity to light, sometimes tunnel vision, dizziness, nausea, followed by a severe headache. I have never met anyone else with these symptoms after drinking something as mundane as a cup of coffee, the symptoms can be quite terrifying, depending on what I have drunk i.e if I drink filter coffee, symptoms are more severe then after a can of redbull, yet a latte can effect me more then an americano. I do try to avoid coffee (even though I love coffee Neutral ) and definitely energy drinks, but sometimes people do slip up and give you a normal coffee instead of a decaf. I am fine with instant coffee, cola, tea and some (very few) coffees . I am curious to know if anyone else has this? If it is an ingredient in coffee or caffeine that is the trigger? I have tried googling it but have found no answers. I have found out that coffee can be good for migraine suffers, just not me Crying or Very sad

Freya76

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Re: A hello from a newbie seeking answers :)

Post by pīwakawaka on Wed Jan 23, 2013 9:54 am

I know that for many migraineurs, caffeine can be a migraine trigger. For others it can boost the effect of their pain medication. I know that for myself regular moderate coffee consumption seems to reduce the frequency of migraines - particularly if it is not of the "instant" kind.

The symptom you get after drinking coffee are familiar to me. They're very similar to what my "normal" migraines are like (minus the nausea), but they are slow to develop and can hang around for several days.

Your comments about energy drinks are interesting. I avoid them as they often have artificial sweeteners, which I suspect are one of my triggers. However, I have found one brand of isotonic sports drink beneficial if I drink a litre bottle at the very earliest indication that a migraine might be on its way. I have no idea why it might be so beneficial to me, but in the 2 months since I discovered its effectiveness, I have gone from have several migraines a week, down to less than one per week. So far, it seems to be more effective than any of the prescription medicines I have previously tried.

Oh, and BTW, welcome to the forums. I'm sure you'll find the discussions here very informative.

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Re: A hello from a newbie seeking answers :)

Post by Tee on Mon Feb 04, 2013 12:09 am

Hi Freya

having more than one type of mig is quite normal... and caffine as a trigger again quite common.... Have a read of these you may have more than you think...

Should help with types of migs - http://migrainetalkblog.wordpress.com/about/about-migraine/

This should help you understand the stages
http://migrainetalkblog.wordpress.com/about/the-5-possible-stages-of-a-migraine-attack/

You mention a few aura's - again you may have others and not linked them to migs -

http://migrainetalkblog.wordpress.com/about/types-of-aura/

Triggers - you have worked out the one - you may have more -once you work them out just remove them from your life..
http://migrainetalkblog.wordpress.com/about/types-of-triggers/

Hug

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Re: A hello from a newbie seeking answers :)

Post by Freya76 on Sat Feb 16, 2013 11:07 am

Hi, thank you so much for the replys, sorry I have taken awhile to get back to you, but I forgot my details on the forums, grrr, this has been so helpful, I had no idea that most migraine sufferers had 2 types of migraine or more, I thought it was me being abnormal, I had no idea the flashing lights and blind spots were called auras!

I have never been to the doctor about my migraines, they frighten me, so I keep it to myself, my mother gets migraines, as does her sister, so it does run in the family. I know what I get is a migraine, but it does not make it any less frightening every time I have one.

I have been on the contraceptive implant for years, which has lowered the attacks, all the time I keep my hormones in check, I do not get the flashy light mirgraines and all the time I stay off coffee, I do not get the other migraines. I am one of the lucky ones in being able to control my attacks, I feel for the people who cannot.

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Re: A hello from a newbie seeking answers :)

Post by pīwakawaka on Sat Feb 16, 2013 10:36 pm

If your migraines frighten you, then all the more reason to see your doctor. Living with migraines can be difficult enough in themselves, but to bottle fear up inside you can only make it worse. And who knows, you may be one of the lucky ones that responds well to appropriate medication. It's worth a try.

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