Hi, newbie from Wolverhampton, UK

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Re: Hi, newbie from Wolverhampton, UK

Post by Colin on Thu Aug 30, 2012 10:44 am

Hi Lesley Anne, I've been fine today. just realised today that the occasional total numbness I get in my leg is probably migraine aura - it follows a similar pattern to toes, fingers, tongue etc going dead. Have been getting this again recently which fits with the increase in migraines.

I hope the duloxetine works. Did your neurologist give an indication of how long it would take to have an effect?

I know that managing my own stress levels does help. Did the nurse give you any good tips!

Well done. Rest up now.

Colin

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Re: Hi, newbie from Wolverhampton, UK

Post by Lesley anne on Thu Aug 30, 2012 11:45 am

Hi Colin, tried to post earlier but couldn't . My broadband sucks!! Anyway, all the sensations you described plus a few I mentioned like burning hand, leg, weakness, goosebumps etc was, according to the neurologist, what goes hand in hand with our types of migraine. Its bizarre, isn't it. The nurse was really good, discussing how that we need to manage triggers in order to function better. The migraines aren't going anywhere, so we need to manage other stuff to try and help ourselves. Anymore info I get Colin I will let you know. Take care of yourself, nite nite!!

Lesley anne

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Re: Hi, newbie from Wolverhampton, UK

Post by Colin on Fri Aug 31, 2012 8:41 am

Hi Lesley Anne, I have found some triggers dead easy to identify and manage, for example (when I was in my teens) not eating cheese and red wine was a doddle. Stress is one big background trigger for me, if it's there and I can't manage it, that's when not eating and sleeping regularly, lifting heavy weights, and a multitude of other things can trigger my migraines off. I know I should keep a diary and manage them more and will try it out. My last neurologist said I should go back to him for a course of sodium valporate if my migraines get to 2 weeks apart! Maybe managing my triggers will be the answer. Sleep well

Colin

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Re: Hi, newbie from Wolverhampton, UK

Post by Lesley anne on Fri Aug 31, 2012 11:30 am

Hi Colin, nice to hear from you. Well, as you may have guessed, my sleeping pattern is very erratic, I'm still awake at ten past one and I have had four hrs sleep last night. Can't wind down at all, a big trigger for me is also stress. I haven't handled it well the last few weeks and no matter what I try, can't seem to get in to that real deep sleep. I wake up easily, usually with the dog for company!! She's even started just looking up from her bed as if, there she goes again!!! Epilum was another med the doc thought for me too. Said if the duloxetine didn't suit then to try epilum. According to the specialist nurse, it's important to understand our triggers and then try to ensure we do our best to limit the pressure they put on us. It's a difficult one, I'm meant to be going on holiday on Sunday to America, if I'm honest I could see it far enough just now. Just need to try my best, will be taking the ol I pad anyway ( how sad) it will come in handy though, good to check up on the NASCAR racing in Daytona and keeping up with ya lot. How was your day today?? Just as well I wasn't working today. I spent a bit of time taking holly (the dog) out as the weather was nice in Glasgow today. Hope you had a pain free day today, I suppose I better try to get to bed and at least try to snooze for a while. Docs appt a nine!!! Nite nite Colin, sleep tight.

Lesley anne

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Re: Hi, newbie from Wolverhampton, UK

Post by Dr Pav Khaira on Fri Aug 31, 2012 10:15 pm

Don't you just hate the trying of different meds?!

Your trip to the US sounds COOL! I've never been to NASCAR but I have a couple of friends who say the buzz is unreal
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Dr Pav Khaira

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Re: Hi, newbie from Wolverhampton, UK

Post by Colin on Sat Sep 01, 2012 11:14 am

I find all the drugs confusing as I don't really know how they work.

Lesley Anne, have a great time in the US


Colin

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Re: Hi, newbie from Wolverhampton, UK

Post by Lesley anne on Sun Sep 02, 2012 1:54 pm

Hi Colin, thanks for your reply. I know what you mean about all the different meds n stuff. Started the duloxetine yesterday, bit of a weird feeling!!! Lots of goosebumps and funny head but I suppose it will take time. My auras have subsided a great deal so hopefully I'm turning a corner, and it feels good to have a clear head. The legs are a still a bit jerky but that should calm down too. I honestly feel as if the migraines I take are like fits, do you ever experience that?? Well, I went back to work yesterday for my 24 hr shift, managed to get through it unscathed and get a nites sleep- yehaaaa!!!! The first in weeks. Up a bit early today, had a lot of running about yesterday, taking the dog etc to cousins and doing the rat run about trying to get dollars etc. left it very last minute. I'm hoping that I can relax on the holiday and chill, you'd like it in Orlando, kind of caters for all tastes whether you want to be like a kid for two weeks with the parks or do more adventurous activities. Last time I was there managed to see the beach boys and the eagles in outdoors concerts , watch a shuttle flight at Kennedy, and spend some time with the dolphins. Big kid really, this time around I'm afraid I'm missing all my stuff, Justin biber and such likes are playing ( showing my age here) not in the slightest bit interested so maybe take in a basketball or football game and hit the waterparks. Never did that before. All this of course depends on my blooming head!!!! Have u had a nice weekend so far?? Take care of yourself and.hope you are well!!

Lesley anne

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Re: Hi, newbie from Wolverhampton, UK

Post by Colin on Mon Sep 03, 2012 6:46 am

Hi Lesley Anne, Glad your aura' going. I feel like I'm heading into another chronic episode at the moment. Yesterday my leg went dead for about 20 minutes. No other aura or headache at the moment except for problems saying words! I also have problems sleeping, which is partly connected with the migraines. I've been trying to eat well, exercise, rest and relax regularly to minimize the effects of having broken sleep. Seems to be working except the aura are still getting closer together. This forum is really helping me stay more aware of triggers, aura etc and feel like I'm not the only one who understands what I'm going through. Glad you got a good night's sleep. Have a great holiday.

Colin

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Re: Hi, newbie from Wolverhampton, UK

Post by Lesley anne on Mon Sep 03, 2012 10:46 am

Hi Colin, I hope your feeling better soon. I just wonder if we are ever totally free from the auras. Do u know what I mean?? Although I may have good days, I sometimes feel they just hover in the background. Hope you get plenty of rest and tlc. Keep ur chin up mate, glad ur not alone in the suffering of these migraines. Take care n sleep well.

Lesley anne

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Re: Hi, newbie from Wolverhampton, UK

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